What's Coming in 2011

The two main things I want to profile on my blog in 2011 are: (1) IKAN User profiles from people around the U.S. and World, and (2) further chronicles of my pursuit of the Diaphragm Pacing System (DPS).

Wheelchair users around the U.S. and also some abroad, mostly in Europe, are enjoying dynamic bowling with the IKAN Bowler and I want to share more of their stories/profiles here.  Many wheelchair users, especially power wheelchair users, still don't know that dynamic bowling is possible, regardless of one's reason for wheelchair use or chair type.  Anyone who can safely operate a wheelchair can bowl, and I'm going to share stories of people who are.  Some can be found here: www.WheelchairBowlingRecords.com.

Also, if you've followed my blog, you know I've been pursuing an alternative to the ventilators that I've used the last 13+ years which is a diaphragmatic pacing system.  I'm (hopefully) getting close to a surgery date.  The coordinating doctor for my concurrent surgeries (in addition to the DPS, I'm also having my cardiac pacemaker replaced during the same trip to the operating room) is checking out the possibility of surgery on February 1st or 3rd.  So in roughly a month, I could have these surgeries done, but neither date has been confirmed (either is fine from my caregivers' and my perspective).

The goal of my blog is to spread awareness about how wheelchair users are being empowered, in hopes that it could help improve the quality of life for other wheelchair users.  So I might also share other noteworthy items here.  We'll see what the year brings!

I agree with Charles Swindoll who said, "Life is 10% what happens to you and 90% how you react to it."  May you control what you can and react well to everything else.

Have a healthy and happy 2011 -- and God bless!

Bill Miller :-)

C1-2 Quadriplegic with a 221 High Bowling Game

Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT

My blog: http://powerwheelchairusers.blogspot.com

Business website: http://www.ikanbowler.com

Personal website: http://www.lookmomnohands.net

From Vent to Diaphragmatic Pacing System -- Part IV

For more on my pursuit of the NeuRx Diaphragm Pacing System (DPS) see Part I, II, or III.

I've been approved for concurrent surgeries (i.e. one trip to the operating room for me) -- and met the two doctors who will perform them!  I also learned more about what the surgeons will actually do.

First, Dr. Duran will replace my cardiac pacemaker.  Second, Dr. Cheatham will install the DPS.  Then Dr. Duran will return, and they will ensure there's no interference between the two devices (no previous patient has had interference).  Both doctors will try to set the respective devices optimally for me (they can adjust the stimulus strength, frequency, etc).

Also, we're going to try doing it as true outpatient, i.e. have surgery early in the morning, and (hopefully) be discharged that afternoon.  That's BIG, because it should help limit my chance of acquiring an infection, and the schedules for my caregivers and me will require little altering.  My home health agency will help get my blood back to a therapeutic level.

We're trying to setup surgery for January or February (2011) -- stay tuned!

Bill Miller :-)

C1-2 Quadriplegic with a 221 High Bowling Game

Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT

My blog: http://powerwheelchairusers.blogspot.com

Business website: http://www.ikanbowler.com

Personal website: http://www.lookmomnohands.net

One of the Coolest Commercials EVER!

Checkout this YouTube clip for ThinkBeyondTheLabel.com:

Direct link: http://www.youtube.com/watch?v=lV4HUBUMuHQ

Why is that so cool?  If you didn't notice, it shows a high-level quadriplegic typing with a mouthstick, and later driving his chair via sip-and-puff (the same method I use). I've seen it air on ESPN (i.e. mainstream TV) multiple times in the last month.

Here's part of the "About Us" description on their website:

"Think Beyond the Label is committed to making the business case for employing people with disabilities. We are a partnership of health and human service and employment agencies with federal grants, coming together to build a uniform national infrastructure and approach that connects businesses to qualified candidates with disabilities. Our goal is simple: to raise awareness that hiring people with disabilities makes good business sense. Employees with disabilities have unique, competitively relevant knowledge and perspectives about work processes, bringing different perspectives to meeting work requirements and goals successfully. Hiring someone who 'thinks outside the box' might be thinking too small when there’s an opportunity to hire someone who lives outside the box."

Source: http://www.thinkbeyondthelabel.com/About-Us/About-Us.aspx

I think it's fantastic that such a resource exists to help both people with disABILITIES and companies benefit from working together.

Bill Miller :-)

C1-2 Quadriplegic with a 221 High Bowling Game

Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT

My blog: http://powerwheelchairusers.blogspot.com

Business website: http://www.ikanbowler.com

Personal website: http://www.lookmomnohands.net

From Vent to Diaphragmatic Pacing System -- Part III

For more on my pursuit of the NeuRx Diaphragm Pacing System (DPS) see Part I and/or Part II.

If you've followed my blog and pursuit of the DPS, you know I wanted to be using it by now.  However, I still don't have a surgery date -- though one could be coming soon.  Allow me to explain...

My pursuit of the DPS is slightly complicated by two things: (1) I take a blood thinner medication to prevent blood clots, and (2) I also wish to have my cardiac pacemaker replaced during the same trip to the operating room.

Neither of those two things are all that complicated, however since I have to come off my blood thinner prior to surgery and get back to a therapeutic level afterward, I only want to have one surgery because having two entirely separate surgeries would essentially double the chance that I could develop a blood clot or get an infection.  I don't believe that my risk for developing a blood clot and/or getting an infection is very high (knock on wood and with the Good Lord's blessing) however, either of which could be fatal for person like me who is quadriplegic, since our immune systems are fairly compromised (and blood clots can be dangerous for people with fantastic immune systems).

I don't have a surgery date yet because my original choice of hospital (Shands at the University of Florida; the hospital affiliated with my alma mater) will not allow me to have both procedures concurrently, and I'm not entirely sure why.  We even asked our state representative to encourage Shands at UF and my insurance company to come to an agreement, but that was to no avail.  I think Shands wants to ensure I'm medically stable on my cardiac pacemaker before doing the DPS, however they did not explicitly state that (plus I believe I'm stable now; my pacemaker battery has been dead for several years, and even when working, it's only designed to kick-in if my heartbeats per minute fall below 60, which I was told almost never happens).

Fortunately, Florida has multiple facilities that are DPS surgery approved, and it appears Orlando Regional Medical Center could be the answer.  I don't want to jinx it, but both surgeons (Dr. Michael Cheatham for the DPS, and Dr. Aurelio Duran for the cardiac pacemaker) are ok with concurrent procedures and recommended that to their pre-registration department.  I'm waiting to hear (hopefully good news) from them soon.  Pending approval, a surgery date may be set soon.

So, like many things in life, this has been lesson in both patience and perseverance -- and I will NOT give up, even if ORMC cannot or will not do the procedures together.  Somehow, we'll get this done -- eventually.  Stay tuned for Part IV...

Bill Miller :-)

C1-2 Quadriplegic with a 221 High Bowling Game

Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT

My blog: http://powerwheelchairusers.blogspot.com

Business website: http://www.ikanbowler.com

Personal website: http://www.lookmomnohands.net

BACK IN LIFE -- Zach Weinstein's Story

"In July of 2005, Zack Weinstein broke his neck while jumping into the Saco River in Maine.  He is now a C5-C6 Quadriplegic.  In service to other quadriplegics, we have teamed up with Zack to create "BACK IN LIFE".  Our hope is that by sharing Zack's powerful experiences in this film, it may provide others with needed strength in an oftentimes daunting struggle. Runtime: 15 Min."

Back In Life from Smooth Feather on Vimeo.

Video link: http://www.smoothfeather.org/index.php?pg=films

Video alternate link: http://vimeo.com/355371

Great story, great video -- thank you Zach & Co. for sharing!

God bless!

Bill Miller :-)
C1-2 Quadriplegic with a 221 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
My blog: http://powerwheelchairusers.blogspot.com
Business website: http://www.ikanbowler.com
Personal website: http://www.lookmomnohands.net

IKAN User Profile: Ben Lux, Florida

My buddy Ben Lux is one of the original members of our Central Florida area Quad Squad group.  Ben actually had the top overall score for an IKAN User, a 183 on May 10, 2004.  Ben isn't able to bowl as frequently as he did back in 2004, but he still enjoys bowling when he can.  Aside from bowling, Ben particularly enjoys watching movies and his favorite football team, the Jacksonville Jaguars.  But, above all for Ben is his faith: God first, everything else second.  Amen, Ben!

Here are Ben's answers to the profile questions...

Name: Ben Lux

Age: 32

Location: Yalaha, Florida

Reason for Wheelchair Use: Quadriplegia

Onset or Injury Date: 7/4/93 Automobile Accident

Wheelchair Operation Method: Sip n' Puff

High Bowling Score: 183   

Approx Bowling Average: 100-130

Typical Range of Scores: 80-150

Bowling Frequency: Not as often as I'd like.

Bowling Ball(s): Columbia

Quote from Ben: "A foolish consistency is the hobgoblin of little minds" - Emerson

Thanks Ben!  God bless!

Bill Miller :-)

C1-2 Quadriplegic with a 221 High Bowling Game

Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT

My blog: http://powerwheelchairusers.blogspot.com

Business website: http://www.ikanbowler.com

Personal website: http://www.lookmomnohands.net

From Vent to Diaphragmatic Pacing System -- Part II

In Part I, I explained why I changed my mind about becoming a Diaphragm Pacing System (DPS) user. Link to Part I . . .

After deciding that I want to become a DPS user, I took the next steps of contacting and meeting the surgeon to discuss my candidacy, obtaining necessary medical evaluations, and gaining insurance approval.

I met with Lawrence Lottenberg, MD, FACS, who performs surgery at Shands Hospital at the University of Florida in Gainesville. He thinks I'm a good candidate since I'm relatively young, healthy, and quite motivated. Because I'm on a blood thinner, Dr. Lottenberg said I'll need to be hospitalized for at least two nights: one night preceding surgery to thicken my blood, and one night after surgery to thin my blood back to a “therapeutic” level to prevent blood clots.

I needed to have my heart pacemaker and my phrenic nerve evaluated. My heart pacemaker has a dead battery and will be replaced with a completely new pacemaker. It's a demand pacemaker that only kicks-in if my heart rate falls below 60 beats per minute, which almost never happens. Consequently, there was some debate about whether I need the pacemaker, but since there’s no interaction between the DPS and the pacemaker, why not have it as backup? 

So I will have the pacemaker replaced by a cardiologist when I have the DPS surgery. The cardiologists said that it may take three days following surgery to get my blood back to therapeutic, so I'll probably spend three to five days in the hospital.

The phrenic nerve is the body’s natural way of stimulating the diaphragm for breathing.  A successful phrenic nerve test helps secure insurance approval for the DPS surgery.  But Dr. Lottenberg confirmed that the diaphragm’s ability to be stimulated cannot truly be assessed until the surgeon gets inside, and that the phrenic nerve test often yields false negatives. It can yield a positive, which indicates that my diaphragm is capable of being stimulated, but a negative test doesn’t eliminate the possibility for success with the DPS.

I had an appointment with a neurologist to test my phrenic nerve, but when he found out I had a heart pacemaker, he was not comfortable doing the test. Even though my pacemaker's battery is dead, he said, I still have leads going to my heart and he was concerned about stimulating my phrenic nerve under those circumstances.

After reporting that to Dr. Lottenberg and Dr. Raymond Onders, who pioneered the DPS, Dr. Onders said the neurologist could try stimulating my phrenic nerve only on my right side, to avoid possible interaction with the pacemaker. But that became a moot point when I learned that my insurance company "has now passed protocol for the DPS, thus no prior authorization is needed." That statement was told to Dr. Lottenberg's assistant by the hospital's financial group, and I’m waiting to get written clarification. My understanding is that the surgery will cost more than $20,000, and I don't want the hospital coming after me if my insurance doesn't pay for some reason.

Another insurance issue was trying to get my insurance company to state in writing that my level of nursing coverage would not be decreased when I become a DPS user. Currently I receive 44 hours per week of nursing coverage, and my family covers the remaining 124 hours. For them to cover more would be quite difficult.

I wrote to my insurance company to explain that even as a full-time DPS user, I would still be dependent on a mechanical device to help me breathe, and the rest of my care would essentially remain unchanged. However, the insurance company replied that a "clinical review" would be necessary to determine the level of care I need after I get the DPS.

I wasn't pleased with that reply until I spoke with a Florida friend who has the same insurance company and has been a DPS user for over five years. He told me that he receives 16 hours per day, 7 days per week, of nursing coverage, for a total of 112 hours. He also knows another DPS user with the same level of care and same insurance. Now I'm not concerned about a clinical review and we might even be able to increase my nursing coverage. (For anyone who might have the same concern, Dr. Onders said that no DPS user has had his/her level of insurance coverage decreased, and it shouldn't be an issue for anyone.)

I don't have a surgery date yet, and due to some caregiver circumstances, it now appears my surgery will have to wait until September, or even October.  No worries -- it will happen when it's meant to be.  Stay tuned for Part III about the surgery.

A PDF file of IVUN's newsletter is below; I'm on page 4 with a nearly identical version of what's written above (except for my probable surgery date / time frame; above is more accurate):

http://www.lookmomnohands.net/objects/IVUN-val2010-v24-3NpAll.pdf
 
God bless!

 
Bill Miller :-)

C1-2 Quadriplegic with a 221 High Bowling Game

Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT

My blog: http://powerwheelchairusers.blogspot.com

Business website: http://www.ikanbowler.com

Personal website: http://www.lookmomnohands.net

New Record for Female Bowlers with MD

Peggy Overbey's 167 Is New Record for Females with Muscular Dystrophy

Chalk up the new record as a belated Mother's Day gift.  At our central Florida Quad Squad Bowling outing yesterday, Peggy Overbey's Mom, for the first time, got to come watch her daughter bowl.  And Peggy wasted no time in SHATTERING her previous best of 138 BY TWENTY-NINE PINS!

And to prove her 167 was no fluke, Peggy bowled 165 in her second game!  That was impressive bowling, and a fitting gift for Mom.  I say that because Mom & family chipped in to buy Peggy her IKAN Bowler for Christmas.

Peggy opened with FIVE STRAIGHT marks, before a split ended her streak in the 6th frame.  After open frames in the 7th & 8th, Peggy rebounded with a double (two strikes) in the 9th & 10th and finished with the new record for a female with Muscular Dystrophy, 167.

I actually think Peggy's second game was more impressive than her first, even though it totaled two fewer pins.  Peggy had marks in 8 of her 10 frames, and she had splits (i.e. hard or impossible spare attempts) in her only two open frames.  (For any able-bodied bowler reading this, you may think "no spare is impossible" but with our limited ball speed, the 7-10 split is impossible for us to pickup.  But I caught some of Peggy's magic and did convert the difficult 6-7-10 split (link) for my 8th time in 8 years of dynamic-style wheelchair bowling.)

Peggy cooled off in her last two games, but everyone watching was thrilled at what Peggy had already accomplished -- especially her Mom.

CONGRATULATIONS PEGGY! :-)

Peggy's new record scoresheet is HERE.

For Peggy's previous best, click HERE.

Keep up the good work Peggy!

Bill Miller :-)
C1-2 Quadriplegic with a 221 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
My blog: http://powerwheelchairusers.blogspot.com
Business website: http://www.ikanbowler.com
Personal website: http://www.lookmomnohands.net

IKAN User Profile: Ross Grimball, Louisiana

Ross Grimball emailed me earlier this week wanting some advice on how I pickup the single corner-pin spares (7 and 10, individually).  Ross is a 17-year-old young man who bowls in a youth league, despite using a wheelchair due to Duchenne Muscular Dystrophy.  I was happy to share my approach on those spares, and I also asked Ross if he would mind filling out the IKAN User Profile questions for my blog, which he kindly did.

Ross' Profile answers are below, but first here's the advice I shared in case anyone else is interested:

To pickup single corner-pin spares, what I try to do is go "cross alley" i.e. I try to setup with my chair & IKAN Bowler in line with the corner pin and the center arrow.   Sometimes I'm not perfectly in line with the center arrow and corner pin, but the key, in my opinion, is to drive straight at the corner pin.  Also, I don't actually look at the arrows as I approach the foul line.  I look at the pin, and kind of with my peripheral vision, I'm also looking at my IKAN Bowler.  When it appears I'm aimed accurately, I hit my brakes and let inertia and gravity takeover.

Great question, thanks Ross, and thanks for the profile answers!

Name: Ross Grimball
Age: 17
Location: Patterson, LA
Reason for Wheelchair Use: Duchenne Muscular Dystrophy
Onset or Injury Date: I was diagnosed in 1996 and I have been wheelchair bound for 9 years.
Wheelchair Operation Method: Joystick
High Bowling Score: 170
Approx Bowling Average: 131
Typical Range of Scores: 100-150
Bowling Frequency: I bowl once a week in a youth league at Charlie's Lanes in Morgan City, LA.
Bowling Ball: Tornado (undrilled)
Quote from Ross: "Bowling allows me to compete and have a feeling of self-achievement."

Excellent quote, Ross, thanks again!

Ross sent me a clip of him bowling:

http://www.youtube.com/watch?v=I5D5LOumJTg
 

Bill Miller :-)

C1-2 Quadriplegic with a 221 High Bowling Game

Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT

My blog: http://powerwheelchairusers.blogspot.com

Business website: http://www.ikanbowler.com

Personal website: http://www.lookmomnohands.net

From Vent to Diaphragmatic Pacing System -- Part 1

I, Bill Miller, am paralyzed from the neck down and ventilator dependent due to a high-level spinal cord injury (SCI) that I incurred in August of 1997.  Though I learned of Synapse Biomedical's NeuRx Diaphragm Pacing System (DPS) several years ago, I didn't feel like it could do much to improve my quality of life.  I actually thought it would decrease my quality of life, primarily because the DPS doesn't allow the user to initiate breaths.  Why is that important?

My voice is my primary tool to the world, so the better my speech, the better my quality of life.  Using a Passy-Muir (Speaking) Valve (PMV), I have nearly continuous speech while receiving 13 breaths per minute (BPM) at a volume of 900 cc (just less than half of a two liter soda bottle).  However, sometimes I do "run out" of air to speak with, before I finish my thought.  Fortunately, there are a couple of ventilator settings that enable me to initiate another breath, with just a slight "shrug" of my shoulders (I use my neck muscles to pull my chin down and chest up a little; that’s also how I can breathe when disconnected from the ventilator).

Initiating a breath enables me to shorten the pause in between "scheduled" breaths and continue speaking.  The DPS doesn't allow users to initiate breaths, hence my initial thought that it would decrease my speaking ability and thus my quality of life.  But there's a simple fix: just increase the breath rate.

I'm told that my volume when stimulated to breathe by the DPS should be around 800 cc, so with 14 or maybe 15 BPM, my guess is I won't need to initiate any breaths.  That's what I suspect I'll want during the day when I'm speaking, and I can decrease the BPM for sleeping.

I was also leery about only having battery power for the DPS.  It's comforting to know I have unlimited vent time when plugged-in to a standard outlet, but to also know I have batteries for my vent that give me roughly 12-14 hours on a full charge, and charge simply by being plugged-in.  But I have a friend who has used the DPS essentially 24/7 for over five years, and he hasn't had any issues with the batteries.

With those issues "solved" in my mind, I began to think how I could benefit from the DPS. 

* * * * *

I've heard DPS users' senses of smell and taste both improve, though I cannot imagine certain foods tasting any better than they do now (I enjoy eating:).  And I can smell fairly well when I actively try to take air in through my nose (and selective smelling can be a good thing!:).  So those are minimal benefits for me personally, but here are several that are not.

The biggest benefit I hope to gain from the DPS is being comfortable enough with it to remove the ventilator and vent tray from my wheelchair.  Actually, I'm in need of a new chair (this is my original chair, which is over 12 years old) and I would like to get a chair that can stand me up, so that I can both view the world from my natural height, and bear my weight much more frequently than I do now.  Bearing weight is highly beneficial for one's bones and entire body, I'm told.  Plus, I do speaking engagements, and plan to teach at the community college level upon completing my master's degree -- and how cool would it be for a quadriplegic to be able to stand up when speaking?

Not having a ventilator on my chair would also enable me to maneuver in tight spaces more easily.  And I could drive my wheelchair while standing -- I'd love to roll upright across the stage when I graduate (I rolled seated across the stage for my bachelor's degree, which can be seen on my website HERE).

The DPS would definitely improve my speech quality in bed, because it would be like using a speaking valve all the time.  (The PMV is a fantastic little one-way valve that enables one to take in air easily through one's trach, but seals off in the exhale direction, thus enabling the user to have air around his/her vocal cords even when the vent isn't giving a breath, which allows for more continuous speech.)  I don't currently use a speaking valve in bed because the valve tends to dry out my airway, so in bed, I re-humidify my airway.

Another benefit would be that the DPS should allow me to either cap my trach or use a small speaking valve, either of which would make getting dressed a bit easier, and also would make wearing certain clothes MUCH easier.  Right now, with the vent circuit attached to my trach, it protrudes about 1.5 to 2 inches, which makes wearing some dress shirts or a tie quite difficult.

I could also potentially wear a turtleneck or mock-turtleneck, which I cannot currently do (because they put pressure on my trach and stoma), and they could hide my trach altogether.  I'm not self-conscious about my trach or general appearance, but that would obscure a sign of my disability, which would be good because I try to not let my disability define what I can do -- despite being paralyzed from my neck down, I still feel like I have the ability to accomplish quite a bit (I thank the Good Lord for blessing me with good support systems).

Some DPS users have even had their trachs removed entirely.  Even if I'm able to build up to 24/7 DPS use, it would take me a while to even consider having my trach removed.  That's a big step -- that maybe I'll get to consider in six months or a year.  That said, my on-vent quality of life is high (many thanks to a CoughAssist machine, which you can read about on my website HERE) so I won't be too disappointed if I'm not able to use the DPS.  No worries!

This is the first of (hopefully) five entries I've been asked to submit for the International Ventilator User's Network (IVUN).  If all goes well with my efforts to become a DPS user, then here are the proposed entries: Column 1 (April 2010) Why I'm seeking a DPS; Column 2 (June 2010) Candidate screening / pre-surgery requirements; Column 3 (August 2010) DPS surgery; Column 4 (October 2010) Post surgery use; Column 5 (in 2011) Extended use.  IVUN's website is www.ventusers.org.

A PDF file of IVUN's newsletter is below; I'm on page 5 with a nicely edited version of what I wrote above:

http://www.lookmomnohands.net/objects/IVUN-val2010-24-2Nsec.pdf

Bill Miller :-)
C1-2 Quadriplegic with a 221 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
My blog: http://powerwheelchairusers.blogspot.com
Business website: http://www.ikanbowler.com
Personal website: http://www.lookmomnohands.net

New Record for Female Bowlers with MD

My friend and fellow Central Florida Quad Squad Bowler Peggy Overbey reset her personal bowling record, which also happens to be the dynamic wheelchair bowling record for females with Muscular Dystrophy.

Peggy was somewhat "starting from scratch" because she purchased a new ball, and is/was trying to figure it out at Quad Squad Bowling.

So, it wasn't really surprising that she started off with a 93, but she improved to 114 in her second game.  And she kept the upward momentum going and achieved a 138 in her third game, which is the new record for female bowlers with MD.  She had six marks (all spares) in the game, which means she pretty well earned that 138.

Peggy is doing what I suggest new IKAN Users do -- that is simply try to keep beating your personal best when you bowl.  It's easier said (or written:) than done, but that's how you can demonstrate improvement.  In that way, you're competing with yourself.  (Although it's quite fun to try to beat your friends and/or caregivers too!:)

Dynamic wheelchair bowling is a fun, yet challenging sport, and it's not super easy to get the ball where you want it everytime, or even the vast majority of the time.  I have a ton of experience, and though I've broken 200 ten times, my average is probably about 150.  And some days my average is below 150.

No worries -- it's still fun!  :-)

For "Keys and Tips for Dynamic Wheelchair Bowling" click HERE.

Peggy's new record scoresheet is HERE.

For Peggy's quite impressive first IKAN experience, click HERE.

Keep up the good work Peggy!
 
Bill Miller :-)
C1-2 Quadriplegic with a 221 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
My blog: http://powerwheelchairusers.blogspot.com
Business website: http://www.ikanbowler.com
Personal website: http://www.lookmomnohands.net

First-Time IKAN User Sets Female MD Record

Peggy Overbey, a 44-year-young woman who was born with a type of Muscular Dystrophy called Spinal Muscular Atrophy, bowled remarkably well for a first-time IKAN User, and in doing so, set the initial pace for female bowlers with MD.

Peggy is our newest Central Florida Quad Squad member, and when she told me she was finally going to be able to bowl with us, I tried to give her realistic expectations for her first IKAN experience.  I mentioned that any score approaching 100 in her first three games would be a solid start, and breaking 100 in any of her first three games would be an excellent start.

A typical first game involves trying to get familiar with how the ball will break when setup in certain positions and the overall process of bowling dynamically.  That doesn't usually result in very good scores, and Peggy's 77 was pretty typical.  Her next game was not.

Not only did Peggy break 100 in just her second game, she had FIVE marks and bowled a 129!  And to prove it wasn't a fluke or beginner's luck, she topped it with a 135 in her third game!  But she wasn't done.

She kept demonstrating a solid feel for bowling and added a 125 and 134 in games four and five.  Even including the 77, Peggy averaged 120 for her first five games -- that's impressive!

Five games is quite a bit of bowling, but Peggy was having so much fun, she wanted to bowl a sixth game, and she did.  But I think she got tired and lost a bit of focus, and consequently scored a 75.  Nonetheless, it was an amazing first IKAN experience, and Peggy's 135 is the initial record for female bowlers with MD.

I was most impressed that her approach and ball placement were so solid; she knew where the ball needed to go for the particular shot, and she executed shots quite well.  Even when she missed, it wasn't by much.  So that 135 probably won't stand very long.  But it's a GREAT start!

CONGRATULATIONS PEGGY and keep up the good work!  :-)

Oh, and for any other females with MD who may read this, I'm certain Peggy would encourage and welcome the competition.  Any wheelchair user can bowl with an IKAN Bowler.

Peggy's scoresheet is HERE.

And no worries -- I'll gladly update the female with MD record whenever it's broken!

Bill Miller  :-)
C1-2 Quadriplegic with a 221 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
My blog: http://powerwheelchairusers.blogspot.com
Business website: http://www.ikanbowler.com
Personal website: http://www.lookmomnohands.net