Showing posts with label quadriplegic. Show all posts
Showing posts with label quadriplegic. Show all posts

Sunday, July 31, 2016

Incredible Three-Game Series Bowled by Power Wheelchair User

Curtis (Curt) Wolff is an excellent bowler, despite having to bowl from a seated position.

Curt was an avid bowler – averaging in the 220s – before being afflicted by the West Nile virus, which resulted in him experiencing acute flaccid paralysis and he now functions much like a C4-5 quadriplegic. Thus, Curt requires a power wheelchair for mobility.

He was thrilled to discover the IKAN Bowler® which enabled him to rekindle his passion for bowling.

And on March 14, 2016 Curt bowled an incredible three-game series: he averaged 213.67, bowling three consecutive games over 200 – a 212, a 205, and a 224 – with ZERO open frames in the series!

As a fellow wheelchair user with about 1000 games of experience with the IKAN Bowler®, please let me try to explain just how good Curt's series was.

My average is about 150 and I usually bowl three or four games twice a month with our local Quad Squad group, and have been blessed to do so for more than a dozen years. That's where the roughly 1000 games of experience comes from, and I'm also a world record holder with a 255 high game.

In roughly 1000 games, I have scored 200+ a total of 24 times. Sheesh, that makes me look like not-so-good of a bowler – but it's really not that easy to break 200! :-)

Driving our wheelchairs, we get about 6 mph of ball speed using the IKAN Bowler® which requires us to be very precise (some luck doesn't hurt either!) in order to score big. Comparatively speaking, able-bodied male professional bowlers hurl their bowling balls down the lane at an average of roughly 19 mph, and consequently, they get much greater "pin action" when their ball impacts the pins. Greater pin action leads to more strikes. More strikes leads to higher scores. Consecutive strikes in particular really help scores add up quickly, but making spares is important also.

I mention all this because in three games, or 30 total frames, Curt had either a spare or strike in every single frame.

Comparatively, despite having 24 games of 200+ out of my 1000 bowled, I think I have had at most half a dozen (six games) with zero open frames (an open frame is one without a spare or strike).

Point being, it is quite difficult to bowl 200+ and even more difficult to bowl a clean game with no open frames.

Curt did BOTH in three consecutive games.

That is mighty impressive!

And if you look at his scoresheet, you will notice he had to convert three splits in order to not leave an open frame. Two of the splits required very precise shots.

The print out of his scoresheet (viewable as a PDF file HERE) shows that he had a 2-10 split in the second frame of his first game, and if you aren't familiar with the pin positions, the scoresheet shows you where they are. Even a non-expert bowler can tell that that is a difficult spare to pick up.

In game three, Curt had to pick up a 9-10 split, which is two pins exactly side-by-side. To convert that spare essentially requires the ball splitting the gap right between the two pins – and the ball itself is just a little bigger than the gap. The space between two side-by-side pins is 7.25 inches, and standard bowling balls are 8.5 inches, so there's not much room for error if the ball is going to knock both pins over.

In totality, that is the best three-game scoresheet I have seen from a wheelchair user bowling in dynamic fashion (dynamic just means incorporating the movement of the wheelchair, i.e. not stationary ramp bowling).

In case it's not obvious by now… I am HIGHLY impressed.


Click HERE for a video clip of Curt bowling a pocket strike.

And click HERE for a video clip of Curt picking up a spare.

Keep up the terrific bowling Curt! :-)

Bill

William A. Miller, BSBA, ME
C1-2 Quadriplegic with a 255 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
Business website: http://www.ikanbowler.com
Personal website: http://www.lookmomnohands.net
 

Thursday, March 31, 2016

3rd Annual Bowl-A-Thon for Rhonda

The last two years, many folks have contributed to successful bowl-a-thon fundraisers to help keep my friend and fellow quadriplegic, Rhonda Reese, out of a nursing home. And I thank you all, most sincerely – collectively it's been a huge help. But I have pledged to organize annual bowl-a-thons to help keep her living in a community setting as long as possible. (The general thought of a quadriplegic trying to live in a nursing home… it is tough for me to bear.)

So, on May 14, 2016 we are having the "3rd Annual Bowl-A-Thon for Rhonda" at AMF Leesburg Lanes from roughly 4-6 PM, coinciding with our Quad Squad outing. Details and helpful materials are here:

http://www.lookmomnohands.net/Rhonda.htm

Rhonda lost both her parents in 2012. She is paralyzed from the chest down and 49 years young. Nursing homes generally are not well equipped to provide the care quadriplegics need.

If you want to sponsor a bowler, bowl yourself and seek sponsors, share this info, or "just" make a donation… any or all would be much appreciated. Please contact me with any questions.

Thank you – and may God bless us all.

Bill

William A. Miller, BSBA, ME
C1-2 Quadriplegic with a 255 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
Business website: http://www.ikanbowler.com
Personal website: http://www.lookmomnohands.net

Tuesday, March 31, 2015

Rhonda's Bowl-A-Thon Results

Rhonda's bowl-a-thon went well, overall. I did not bowl particularly well for me (my highest of three games was 134) but all things considered, our collective efforts should result in significant help for Rhonda, which was the goal. We raised a significant amount of money, and perhaps even more importantly, the act of raising awareness resulted in two strong leads for potentially helping Rhonda get more care covered (maybe even 24/7, although I don't want to jinx it).

I won't make excuses, but bowling in this chair is significantly different than what I did regularly for more than the previous 10 years, and apparently I'm still not used to it. My three scores were 126, 124, and 134. The bowling star of the show was my fellow Quad Squad bowler, Lilian, who started with a 164 in her first game, and topped it with a 169 in her third.

Much to her chagrin, Rhonda was unable to attend her own bowl-a-thon, due to being hospitalized with pneumonia since March 13. But she seems to be getting better, as she was able to get in her chair for about four hours on Friday, and rumor has it, she may get discharged relatively soon – PTL.

I think everyone in attendance felt good about helping Rhonda, and I thank everyone who has for doing so.

May God bless us all!

Bill Miller :-)
C1-2 Quadriplegic with a 255 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
Business website: http://www.ikanbowler.com
Personal website: http://www.lookmomnohands.net
 

Saturday, January 31, 2015

2nd Annual Bowl-A-Thon for Rhonda

Last February, we had a very successful bowl-a-thon fundraiser to help my friend and fellow quadriplegic, Rhonda Reese, stay out of a nursing home. Roughly two years ago, at the age of 46, she lost both of her parents, and has been trying to do all that she can to keep living in a community setting in her apartment. And I thank everyone who contributed to the success of last year's bowl-a-thon.

But if we are going to KEEP Rhonda out of a nursing home indefinitely, then we will need to do a bowl-a-thon annually. Rhonda is doing other fundraisers and all that she can to avoid having to go to a nursing home, and she does have some government assistance, but it is still a fairly delicate situation that she is managing about as frugally as possible. Only God knows what the future holds, but we are endeavoring to help Rhonda, and hopefully this can be a successful annual event.

Here are the full details about this year's bowl-a-thon:

http://www.lookmomnohands.net/Rhonda.htm

Please contact me with any questions or if you want to participate in any way, and feel free to spread the word.

I thank you for your consideration to help – God bless!

Bill Miller :-)
C1-2 Quadriplegic with a 255 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
Business website: http://www.ikanbowler.com
Personal website: http://www.lookmomnohands.net
 

Friday, January 31, 2014

Article on Our Bowl-A-Thon Efforts

Rhonda's bowl-a-thon is in eight days and we are trying to spread awareness and gain additional participants and/or sponsors.

Yesterday, the Orlando Sentinel published an article. The online version apparently was much shorter than the printed version in the newspaper? I only saw the online version, which is here:

http://www.orlandosentinel.com/news/local/lake/os-lk-bowl-a-thon-rhonda-reese-20140130,0,2854880.story

If that link stops working, there is a PDF printed version – and additional information – on the bowl-a-thon's webpage on my website here:

http://www.lookmomnohands.net/Rhonda.htm

If you're interested in helping either as an individual sponsor, or as a participant… please let me know.

Thank you for your consideration and may God bless us all!

Bill Miller :-)
C1-2 Quadriplegic with a 255 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
About Bill: http://www.lookmomnohands.net/About_Bill.htm

Saturday, November 30, 2013

Blessings and a Bowl-A-Thon

Below is the body of an email that I wrote to share with family and friends on Thanksgiving. If you read my blog or are friends with me on Facebook, and would like to be on my master email list to which I send occasional updates and things I feel are important, just let me know. And if the message below resonates with you and you want to participate by bowling or sponsoring me, please let me know. Thank you. :-)
 
Hello Everyone!

On this Thanksgiving, I'm doing well and have much to be thankful for, including family and friends both near and far. Being a quadriplegic, one of the biggest blessings is that I am able to live at home with my family and not in a nursing home.

Not only do I want to wish you a Happy Thanksgiving and help to remind us all of the blessings that we should not take for granted, but I also want to ask for a little help to keep a quadriplegic friend of mine out of a nursing home for as long as possible.

On February 8, 2014 we are having a bowl-a-thon to raise money for my dear friend Rhonda to help pay for the care she needs. If you're able, will you please sponsor me for ten cents per pin for my highest of three games at the bowl-a-thon? So if I bowl a 100 high game, your donation would be $10 and if I bowl a 200, your donation would be $20 (my average is about 155 and my highest ever is 255).

We are also looking for as many people as possible who want to bowl in the bowl-a-thon, and who will seek 10 sponsors for their highest of three games. We are bowling at AMF Leesburg Lanes from roughly 4 to 6 p.m. with our Quad Squad bowling group and hopefully a bunch of able-bodied friends. Please let me know if you're interested.

Rhonda was injured in a car accident in 1991 at the age of 25, and her mother was her primary caregiver for more than 20 years until cancer made her unable, and ended her life about a year ago. Her efforts for all those years are what kept Rhonda out of a nursing home, and with your help we can continue those efforts.

May God bless you and yours this Thanksgiving and may we count our blessings.

And may we count ten cents per pin for Rhonda on February 8.

Bill Miller :-)
C1-2 Quadriplegic with a 255 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
Business website: http://www.ikanbowler.com
Personal website: http://www.lookmomnohands.net

Friday, May 31, 2013

Vent-Dependent Quadriplegic Earns Master's Degree

My blog is about empowering wheelchair users, and I hope that by sharing that I recently graduated with a Masters of Entrepreneurship from Western Carolina University, perhaps others will be encouraged to pursue additional education or whatever they desire.  I finished my Bachelor's degree and earned my Master's online in accredited degree programs.  If it helps to provide further encouragement, in every course since becoming paralyzed, I earned an A grade.

Lori Carter, a freelance writer for the Orlando Sentinel, did a story on my graduation and some of my activities.  The story was fairly long and the Sentinel chose to break it up into two smaller articles.  Here are the titles and links...

Overcoming disability, Leesburg resident Bill Miller earns master's degree:
http://www.orlandosentinel.com/news/local/lake/os-lk-bill-miller-quadriplegic-graduation-20130529,0,6799500.story

Quadriplegic Bill Miller doesn't let disability slow him down:
http://www.orlandosentinel.com/news/local/lake/os-lk-sidebar-bill-miller-quadriplegic-graduation-20130529,0,5074569.story

Philippians 4:13 (NIV) "I can do all this through him who gives me strength."

All glory to God, and God bless all!

Bill Miller :-)
C1-2 Quadriplegic with a 255 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
Business website: http://www.ikanbowler.com
Personal website: http://www.lookmomnohands.net

Saturday, April 30, 2011

Quad Squad Bowling

Our "Quad Squad" is a group of mostly power wheelchair users who get together in Central Florida and bowl (usually twice a month) using the IKAN Bowler.  (The IKAN Bowler is an empowerment device that attaches to the front of almost any wheelchair -- it's fun, therapeutic, and legit: www.ikanbowler.com.)

We usually have between 3-5 IKAN Users bowling, and have had eight at one time.  Since we bowl regularly, a non-profit organization called LovExtension (www.lovextension.com) provides caddy help for us bowlers, which gives our caregivers a chance to relax and cheer us on.

See pictures of a Quad Squad outing for free on Facebook or Shutterfly (no account required to view them from either entity).

Here are record scores for various categories of wheelchair users:

The name "Quad Squad" isn't trademarked or anything, and anyone reading this could start their own Quad Squad group in their area.  No worries.

We typically bowl twice a month: on the 2nd Saturday of each month at Classique Lanes in Tavares, and on the 4th Saturday of each month at Spanish Springs Lanes in The Villages (addresses below).  We bowl from roughly 4-6 p.m. 

When it's bowling week, I send an email to my Quad Squad Bowling list (I'll add anyone who wants on) to remind and affirm when and where we plan to bowl (I occasionally share additional items I believe are noteworthy also).

Most importantly, Quad Squad Bowling is a WHOLE LOT OF FUN! :-)

If you'd like to join us sometime, contact me via my website (www.lookmomnohands.net).  We usually have an IKAN Bowler available for someone to borrow!

Here are the addresses for where we usually bowl:

CLASSIQUE LANES (Bowling Center)
15026 Classique Lane
Tavares, FL 32778
352-343-5333

SPANISH SPRINGS LANES
997 Alverez Avenue
Lady Lake, FL 32159 (Lady Lake/The Villages)
352-750-9440

Thanks for your interest and God bless!

Bill Miller :-)
C1-2 Quadriplegic with a 221 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
Business website: http://www.ikanbowler.com

Monday, February 28, 2011

Results of My Surgeries: Healthy but No DPS

For more on my surgeries, see this this blog entry.

Ultimately our trip for my surgeries was successful, though not as successful as hoped.

The primary successes from my surgeries were: replacing my cardiac pacemaker, getting x-rays of my chest and neck (that I was given to view on CD) and having actual outpatient surgery for my procedures (no overnight stay required, which limited my chances for infection; I just had my three-weeks post-surgery follow-up appointments, and I've healed well with no infections -- thank you God!).

Missing from that success list is implementation of the Diaphragm Pacing System (DPS).  Even when inside my chest, with the electrodes placed on my diaphragm, my diaphragm wouldn't fire when stimulated by the DPS.  My surgeon, Dr. Michael Cheatham, tried everything -- even calling DPS inventor Dr. Raymond Onders (who trained Dr. Cheatham to do the DPS) for additional suggestions.  It wasn't meant to be.

No worries.

Though I could have received several benefits from the DPS, I stand by my statement that I already have a high quality of life and I'm not limited by the vent in the most important ways: speech quality and infections.

For a quadriplegic like me, my ability to talk well is of extreme importance.  And if you've heard me talk in person or via phone, I think you'll agree that I speak well and typically clearly, at an appropriate volume (when well hydrated) and with little pause between breaths (thanks to a speaking valve, and due to the ability to initiate another breath sooner than programmed and also receiving fairly large breaths).  With the DPS, I was concerned about matching that quality because breaths cannot be initiated with the DPS and the size of breath is smaller than what I receive via vent (quite possibly 30% smaller for me).  That could have been mitigated by increasing my breath rate on the DPS, but only doing it could answer that question.

Also, my lack of significant respiratory infections for a vent user is fairly uncommon, and is represented by zero respiratory-related hospitalizations in the 13.5 years since I was discharged from my initial hospitalizations and rehab (knock on wood and thank you God).  I'm certainly not saying that my number of infections would have increased on the DPS (it could have, because I'm breathing through 3 filters on the vent, and would have one filter at most on the DPS) but it's hard to beat zero in 13.5 years.

I'm not trying to disparage the DPS; I have two friends in particular who are benefiting significantly from the DPS, and I wanted to try it and potentially benefit from it.  But I don't want anyone reading this to think that life with a ventilator is a necessarily bad.

If my diaphragm would have fired when stimulated by the DPS, I would've continued to embrace the challenge of becoming a successful DPS user.  But that is/was a very significant challenge (especially when considering everything altogether) that included learning and teaching my caregivers different ways of providing for my needs (for example, it would've placed a port on my stomach where the DPS connected that would've required care, and careful bathing around, etc).  Point being, I think that we (as a team) are already good at life with a ventilator, and largely see it as not that big of a deal.

If interested, I could expand on a lot of these points and others.

No worries and God bless!

Bill Miller :-)
C1-2 Quadriplegic with a 221 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
My blog: http://powerwheelchairusers.blogspot.com
Business website: http://www.ikanbowler.com
Personal website: http://www.lookmomnohands.net

Monday, January 24, 2011

Finally a Surgery Date!

Barring something unfortunate, I should have my two outpatient surgeries on February 2nd, 2011, at Orlando Regional Medical Center.  In one trip to the operating room (for me) I'll have my cardiac pacemaker replaced and also the Diaphragm Pacing System (DPS) installed.

For more on my DPS pursuit and surgeries, see this blog entry:


I plan to write a comprehensive post-surgery evaluation of the DPS and my experiences probably in late March, after I've had some adjustment time.

Thanks and God bless!

Bill Miller :-)
C1-2 Quadriplegic with a 221 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
Business website: http://www.ikanbowler.com

Tuesday, November 30, 2010

From Vent to Diaphragmatic Pacing System -- Part IV

For more on my pursuit of the NeuRx Diaphragm Pacing System (DPS) see Part I, II, or III.

I've been approved for concurrent surgeries (i.e. one trip to the operating room for me) -- and met the two doctors who will perform them!  I also learned more about what the surgeons will actually do.

First, Dr. Duran will replace my cardiac pacemaker.  Second, Dr. Cheatham will install the DPS.  Then Dr. Duran will return, and they will ensure there's no interference between the two devices (no previous patient has had interference).  Both doctors will try to set the respective devices optimally for me (they can adjust the stimulus strength, frequency, etc).

Also, we're going to try doing it as true outpatient, i.e. have surgery early in the morning, and (hopefully) be discharged that afternoon.  That's BIG, because it should help limit my chance of acquiring an infection, and the schedules for my caregivers and me will require little altering.  My home health agency will help get my blood back to a therapeutic level.

We're trying to setup surgery for January or February (2011) -- stay tuned!

Bill Miller :-)
C1-2 Quadriplegic with a 221 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
Business website: http://www.ikanbowler.com

Thursday, September 30, 2010

From Vent to Diaphragmatic Pacing System -- Part III

For more on my pursuit of the NeuRx Diaphragm Pacing System (DPS) see Part I and/or Part II.

If you've followed my blog and pursuit of the DPS, you know I wanted to be using it by now.  However, I still don't have a surgery date -- though one could be coming soon.  Allow me to explain...

My pursuit of the DPS is slightly complicated by two things: (1) I take a blood thinner medication to prevent blood clots, and (2) I also wish to have my cardiac pacemaker replaced during the same trip to the operating room.

Neither of those two things are all that complicated, however since I have to come off my blood thinner prior to surgery and get back to a therapeutic level afterward, I only want to have one surgery because having two entirely separate surgeries would essentially double the chance that I could develop a blood clot or get an infection.  I don't believe that my risk for developing a blood clot and/or getting an infection is very high (knock on wood and with the Good Lord's blessing) however, either of which could be fatal for person like me who is quadriplegic, since our immune systems are fairly compromised (and blood clots can be dangerous for people with fantastic immune systems).

I don't have a surgery date yet because my original choice of hospital (Shands at the University of Florida; the hospital affiliated with my alma mater) will not allow me to have both procedures concurrently, and I'm not entirely sure why.  We even asked our state representative to encourage Shands at UF and my insurance company to come to an agreement, but that was to no avail.  I think Shands wants to ensure I'm medically stable on my cardiac pacemaker before doing the DPS, however they did not explicitly state that (plus I believe I'm stable now; my pacemaker battery has been dead for several years, and even when working, it's only designed to kick-in if my heartbeats per minute fall below 60, which I was told almost never happens).

Fortunately, Florida has multiple facilities that are DPS surgery approved, and it appears Orlando Regional Medical Center could be the answer.  I don't want to jinx it, but both surgeons (Dr. Michael Cheatham for the DPS, and Dr. Aurelio Duran for the cardiac pacemaker) are ok with concurrent procedures and recommended that to their pre-registration department.  I'm waiting to hear (hopefully good news) from them soon.  Pending approval, a surgery date may be set soon.

So, like many things in life, this has been lesson in both patience and perseverance -- and I will NOT give up, even if ORMC cannot or will not do the procedures together.  Somehow, we'll get this done -- eventually.  Stay tuned for Part IV...

Bill Miller :-)
C1-2 Quadriplegic with a 221 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
Business website: http://www.ikanbowler.com

Tuesday, August 31, 2010

BACK IN LIFE -- Zach Weinstein's Story

"In July of 2005, Zack Weinstein broke his neck while jumping into the Saco River in Maine.  He is now a C5-C6 Quadriplegic.  In service to other quadriplegics, we have teamed up with Zack to create "BACK IN LIFE".  Our hope is that by sharing Zack's powerful experiences in this film, it may provide others with needed strength in an oftentimes daunting struggle. Runtime: 15 Min."

Back In Life from Smooth Feather on Vimeo.

Video link: http://www.smoothfeather.org/index.php?pg=films

Video alternate link: http://vimeo.com/355371

Great story, great video -- thank you Zach & Co. for sharing!

God bless!

Bill Miller :-)
C1-2 Quadriplegic with a 221 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
My blog: http://powerwheelchairusers.blogspot.com
Business website: http://www.ikanbowler.com
Personal website: http://www.lookmomnohands.net

Wednesday, March 31, 2010

From Vent to Diaphragmatic Pacing System -- Part 1

I, Bill Miller, am paralyzed from the neck down and ventilator dependent due to a high-level spinal cord injury (SCI) that I incurred in August of 1997.  Though I learned of Synapse Biomedical's NeuRx Diaphragm Pacing System (DPS) several years ago, I didn't feel like it could do much to improve my quality of life.  I actually thought it would decrease my quality of life, primarily because the DPS doesn't allow the user to initiate breaths.  Why is that important?

My voice is my primary tool to the world, so the better my speech, the better my quality of life.  Using a Passy-Muir (Speaking) Valve (PMV), I have nearly continuous speech while receiving 13 breaths per minute (BPM) at a volume of 900 cc (just less than half of a two liter soda bottle).  However, sometimes I do "run out" of air to speak with, before I finish my thought.  Fortunately, there are a couple of ventilator settings that enable me to initiate another breath, with just a slight "shrug" of my shoulders (I use my neck muscles to pull my chin down and chest up a little; that’s also how I can breathe when disconnected from the ventilator).

Initiating a breath enables me to shorten the pause in between "scheduled" breaths and continue speaking.  The DPS doesn't allow users to initiate breaths, hence my initial thought that it would decrease my speaking ability and thus my quality of life.  But there's a simple fix: just increase the breath rate.

I'm told that my volume when stimulated to breathe by the DPS should be around 800 cc, so with 14 or maybe 15 BPM, my guess is I won't need to initiate any breaths.  That's what I suspect I'll want during the day when I'm speaking, and I can decrease the BPM for sleeping.

I was also leery about only having battery power for the DPS.  It's comforting to know I have unlimited vent time when plugged-in to a standard outlet, but to also know I have batteries for my vent that give me roughly 12-14 hours on a full charge, and charge simply by being plugged-in.  But I have a friend who has used the DPS essentially 24/7 for over five years, and he hasn't had any issues with the batteries.

With those issues "solved" in my mind, I began to think how I could benefit from the DPS. 

* * * * *

I've heard DPS users' senses of smell and taste both improve, though I cannot imagine certain foods tasting any better than they do now (I enjoy eating:).  And I can smell fairly well when I actively try to take air in through my nose (and selective smelling can be a good thing!:).  So those are minimal benefits for me personally, but here are several that are not.

The biggest benefit I hope to gain from the DPS is being comfortable enough with it to remove the ventilator and vent tray from my wheelchair.  Actually, I'm in need of a new chair (this is my original chair, which is over 12 years old) and I would like to get a chair that can stand me up, so that I can both view the world from my natural height, and bear my weight much more frequently than I do now.  Bearing weight is highly beneficial for one's bones and entire body, I'm told.  Plus, I do speaking engagements, and plan to teach at the community college level upon completing my master's degree -- and how cool would it be for a quadriplegic to be able to stand up when speaking?

Not having a ventilator on my chair would also enable me to maneuver in tight spaces more easily.  And I could drive my wheelchair while standing -- I'd love to roll upright across the stage when I graduate (I rolled seated across the stage for my bachelor's degree, which can be seen on my website HERE).

The DPS would definitely improve my speech quality in bed, because it would be like using a speaking valve all the time.  (The PMV is a fantastic little one-way valve that enables one to take in air easily through one's trach, but seals off in the exhale direction, thus enabling the user to have air around his/her vocal cords even when the vent isn't giving a breath, which allows for more continuous speech.)  I don't currently use a speaking valve in bed because the valve tends to dry out my airway, so in bed, I re-humidify my airway.

Another benefit would be that the DPS should allow me to either cap my trach or use a small speaking valve, either of which would make getting dressed a bit easier, and also would make wearing certain clothes MUCH easier.  Right now, with the vent circuit attached to my trach, it protrudes about 1.5 to 2 inches, which makes wearing some dress shirts or a tie quite difficult.

I could also potentially wear a turtleneck or mock-turtleneck, which I cannot currently do (because they put pressure on my trach and stoma), and they could hide my trach altogether.  I'm not self-conscious about my trach or general appearance, but that would obscure a sign of my disability, which would be good because I try to not let my disability define what I can do -- despite being paralyzed from my neck down, I still feel like I have the ability to accomplish quite a bit (I thank the Good Lord for blessing me with good support systems).

Some DPS users have even had their trachs removed entirely.  Even if I'm able to build up to 24/7 DPS use, it would take me a while to even consider having my trach removed.  That's a big step -- that maybe I'll get to consider in six months or a year.  That said, my on-vent quality of life is high (many thanks to a CoughAssist machine, which you can read about on my website HERE) so I won't be too disappointed if I'm not able to use the DPS.  No worries!

This is the first of (hopefully) five entries I've been asked to submit for the International Ventilator User's Network (IVUN).  If all goes well with my efforts to become a DPS user, then here are the proposed entries: Column 1 (April 2010) Why I'm seeking a DPS; Column 2 (June 2010) Candidate screening / pre-surgery requirements; Column 3 (August 2010) DPS surgery; Column 4 (October 2010) Post surgery use; Column 5 (in 2011) Extended use.  IVUN's website is www.ventusers.org.

A PDF file of IVUN's newsletter is below; I'm on page 5 with a nicely edited version of what I wrote above:

http://www.lookmomnohands.net/objects/IVUN-val2010-24-2Nsec.pdf

Bill Miller :-)
C1-2 Quadriplegic with a 221 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
My blog: http://powerwheelchairusers.blogspot.com
Business website: http://www.ikanbowler.com
Personal website: http://www.lookmomnohands.net

Monday, November 30, 2009

Vent-Dependent Quadriplegic Bowls 10th 200+ Game

I, Bill Miller, am paralyzed from my neck down and ventilator-dependent, yet I recently bowled my 10th legitimate game of 200 or better. I state that not to brag, but to help drive home the point that ANY WHEELCHAIR USER -- who can safely operate his/her wheelchair -- CAN BOWL in dynamic fashion with the IKAN ("I can") Bowler®.

I've now bowled a 200, four 201s, two 202s, a 203, 206, and 221, which is my personal record and the current record for a male who drives his chair via sip-and-puff. What makes the scores legitimate?

The IKAN Bowler® was sanctioned for league and tournament play -- any league or tournament any where, bowling with and/or against able-bodied bowlers or fellow IKAN Users -- by the United States Bowling Congress (USBC).

The USBC sanctioned the IKAN Bowler® because IKAN Users emulate the able-bodied bowling process, i.e. setup, then physically approach and release the ball while stopping short of the foul line. This is considered "dynamic" bowling because executing each shot involves the moving wheelchair. We state this to distinguish dynamic wheelchair bowling from stationary-ramp bowling.

There's nothing wrong with stationary-ramp bowling (and the IKAN Bowler® is great for stationary-ramp bowling) but that's essentially a different sport than dynamic wheelchair bowling, which is equivalent to traditional, able-bodied bowling.

* * * * *

My most recent 200+ game was my 4th 201.

I started off well with a spare, then a strike, and three more spares. Then came a turkey (three consecutive strikes) over my 6th, 7th, and 8th frames, followed by a spare in the 9th.

At this point, I had 184 plus whatever I bowl with my first ball in the 10th. So with a decent/good count (for example 8 pins) with my first ball, I'd have 192 in the 9th, and 200 in the 10th -- PLUS the opportunity for a spare (two more points) and an additional ball (likely 7-10 more points). Therefore, if all that happened, I most likely would've added an additional 17-20 points to my 9th frame score (so with the hypothetical 192, I was looking at potentially scoring 209-212).

The hypothetical 8 pins became 8 real pins and I had 192 in the 9th.

The problem is I was left with a nasty 4-10 split, which is extremely difficult to pickup. I tried, but got only the 4-pin and thus finished with a 201. I was really hoping I'd bowl a score I hadn't before (something in the range of 209-212, like I mentioned above) but it wasn't meant to be. No worries.

ANY score of 200 or better is something to be quite happy about -- and I am! :-)

The scoresheet for my 4th 201 and 10th 200+ game is HERE.

If you're curious, my 221 story & scoresheet are HERE.

Bill Miller :-)
C1-2 Quadriplegic with a 221 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
My blog: http://powerwheelchairusers.blogspot.com
Business website: http://www.ikanbowler.com
Personal website: http://www.lookmomnohands.net

Wednesday, September 30, 2009

A New Record for Male Sip-and-Puff Wheelchair Bowlers!

At Quad Squad Bowling this past Saturday, I bowled a 221, which beat my previous high game (206) by 15 pins! :-)

I must say, I had quite a bit of good luck. I opened with a spare, then four consecutive strikes, followed by two open frames, then three consecutive strikes (the third strike was the first ball of my 10th frame). I followed with split-7 and only got one of the remaining pins for a 221. If that's a bit confusing, see my scoresheet (link below).

It requires some luck (or heavenly help) to get that many strikes, and to get a consecutive group of four and another group of three (if strikes are not consecutive, the score doesn't compound nearly as fast). I scored that high -- yet missed two very makeable spares. The two open frames were single-pin attempts (7 and 10, respectively) and when I'm bowling really well, I typically pickup those single-pin spares. And if I had, my score would have been... drum roll please... 243 -- which would have tied Jon Musgrave for the overall world record.

But I'm NOT complaining! I'm slightly kicking myself that I didn't pickup those two single-pin spares, but I'm amazed that I scored 221 after missing those spares. That shows the power of compound strikes. I've actually bowled at least three games without having an open frame (I just checked some of my old scoresheets) and three of those totaled 202, 203, and 206. I had to work harder in those games because I had fewer strikes (so I had more spares to convert).

Not to make excuses, but the 221 came in my first game, and that's usually my warmup game where I try to get a feel for my strike ball and also my straight ball for spare attempts. I had one easy spare in the first frame (I think it was the 2-4, which is two pins offset but close enough to get by striking either side of the 2-pin) then four strikes, followed by the two corner single-pin spare attempts. I actually took some time to "compose myself" before those attempts, knowing I had only used my straight ball once. But I missed both.

I just knew missing those spares was going to hurt when I looked back at the game (at what my score could have been) but, at the same time, I recognize how uncommon it is to get that many consecutive strikes in a game (with our moderate ball speed, we don't generate a lot of pin action) and I'm grateful to now be able to say I bowled a 221. That's a new record for male wheelchair users who drive by sip-and-puff.

I lost some focus in my second game and had a 136, meaning I needed a 143 in my third game for a 500 series (that's actually my goal when I bowl). I bowled 171 in my third game for a 528 series.

Ok, my record scoresheet is HERE.

If you're curious, my previous best 206 (story & scoresheet) is HERE.

AND -- I get a new signature! See below...

Bill Miller :-)
C1-2 Quadriplegic with a 221 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
My blog: http://powerwheelchairusers.blogspot.com
Business website: http://www.ikanbowler.com
Personal website: http://www.lookmomnohands.net

Saturday, August 23, 2008

Quadriplegic Graduates with 4.0

The purpose of my blog is to show how wheelchair users, especially power wheelchair users, can be and are being empowered -- mostly through sport (bowling and power soccer). But perhaps the MOST empowering activity one can do is to increase his/her education. Increasing one's education is arguably more important for someone with a significant physical disability, since it isn't possible to earn a living doing manual labor. Apparently, education level can impact happiness too.

With regard to quadriplegics, I read that quads who continue or "complete" their education (and perhaps those who achieved higher education before becoming quadriplegic) are often happier than quads with less education. I believe being happy is a choice that essentially anyone can make, regardless of education level or even disability, but I do see how achieving higher education can help someone feel happy. Thinking about my long educational journey and the challenges I conquered... it is something I will always appreciate and can feel good about. Here are some details...

I became a quadriplegic literally 11 years ago today -- August 23rd, 1997. I was injured just before I was to begin my senior year at THE University of Florida as a math major. I spent three months in hospitals and was discharged from Shepherd Center in Atlanta as a C1-2 ventilator-dependent quadriplegic (much like Christopher Reeve). I had to move home with my parents and team of family caregivers who cover all times when we don't have a nurse (I currently have 40 hours of nursing coverage a week). I've been as busy and productive as possible since returning home (I haven't spent one full day in bed, ever since I've been home). With good caregivers & caregiver routines, I have been quite healthy, despite my paralysis (knock on wood and thank you God:).

But I plan to be financially independent one day -- whether still paralyzed or not. That meant going back to school, and there is only one school from which I ever wanted to graduate -- UF. To go back required an online option, and boy was I THRILLED to learn they have an Online BSBA Program (Bachelor of Science degree in Business Administration). I needed some prerequisites, which UF advisor Jill Lingard told me I could acquire online via St. Petersburg College (one can earn an entire AA degree online via their eCampus). I actually started back to school four years ago today -- on the 7th anniversary of my injury.

I completed the Online BSBA Program with a 4.0 GPA (straight A average) and graduated with honors from the University of Florida two weeks ago -- August 9, 2008. It was important to me to "ace" the Program because I wanted to demonstrate that I can be highly successful despite being vent-dependent and paralyzed from the neck down. And I actually rolled across the stage in Gainesville, too.

I almost did not get to roll across the graduation stage. My wheelchair is extra long, largely due to the ventilator on back. UF has a hydraulic lift to raise wheelchair users to the stage, except it wasn't designed with chairs like mine in mind. I was barely in what was like a metal box, and my feet were pushing the door forward. As they tried to raise me the door caught the stage -- and the STAGE WAS COMING UP! That happened twice! Finally, on the third attempt, some people pushed the door back away from the stage and the lift cleared.

You can see me roll across the stage on UF's webcast of the graduation ceremony (commencement) at the below link (on that page, scroll down to "Previous Commencement Webcasts" then choose morning ceremony and your desired player). I roll across at about one hour, 25 minutes, and 30 seconds. Start about 1:24:30 and you'll see the UF official in the Orange & Blue robe who is ushering students through. You'll see him stop the line and take a couple steps forward. That's when the stage was coming up; he was telling them to stop and go back down. Then you'll see me roll across the stage. Click HERE for the commencement page!

Also, if you go to the Online BSBA web page, you'll see a picture of the summer graduates and I'm on the right side of the picture -- click HERE (ok they apparently already removed the picture, but I did a "print screen" command and captured it; click HERE for the picture!).

I shared my "full" educational journey on my website before writing this blog entry. I shared some different things above, and if you want additional details on my educational journey and where I'm planning to "go" from here... click HERE! Thanks...

Bill Miller :-)
C1-2 Quadriplegic with a 206 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
My blog: http://powerwheelchairusers.blogspot.com/
Business website: http://www.ikanbowler.com/
Personal website: http://www.lookmomnohands.net/

Wednesday, October 31, 2007

IKAN User Profile: Jon Musgrave, Colorado

I've mentioned Jon Musgrave in some previous blog entries. Jon is the world record holder for dynamic bowling by a wheelchair user. When he got an IKAN Bowler, he bowled 3-5 days per week for more than a year, and wrote: "Who could have thought that one thing could change a person's life so much. I have something that I'm good at to look forward to enjoying every day; something I can share with my family and friends. I can tell you this for sure, my life has not been the same since I got my IKAN Bowler®."

See below to find out more...

~~~~~

Name: Jon Musgrave
Age: 36
Location: Grand Junction, Colorado
Reason for Wheelchair Use: Spinal Cord Injury C4-5
Onset or Injury Date: April 19, 1991
Wheelchair Operation Method: powerchair joystick
High Bowling Score: 243 <-- World Record (see scoresheet HERE:)
Approximate Bowling Average: 165
Typical Range of Scores: 130-214 (like Bill, I'm also not the most consistent:)
Bowling Frequency: Lately on Monday nights with my 10 year old son in a league, and I try to go once or twice a week. My 243 is good, but I want to be the first to bowl 300! :-)
Bowling Ball(s): First ball is a Hurricane; second (for spares) is a Columbia White Dot
Quote from Jon: "Bowling is a great way to take your mind away from everything and just be happy."

~~~~~

Thanks for sharing Jon! :-)

Click HERE for five things to know about power wheelchair bowling!

Sunday, July 22, 2007

Five Things to Know about Power Wheelchair Bowling! :-)


#1. Virtually ALL power wheelchair users can use an IKAN Bowler for real, dynamic bowling. (Wheelchair users, IKAN? Yes You Can!:)

How can virtually all wheelchair users bowl? The IKAN Bowler attaches to the user's wheelchair, and is designed so that anyone who can safely drive their chair, can bowl. It's basically a really well engineered attached ramp system -- the momentum from driving forward and stopping releases the ball. We have two types of mounts: Universal and Center-Post. The Universal Mount can accommodate any wheelchair with two side legrests (traditional or sport style legrests; not power elevating -- but people with power elevating legrests can use a set of regular legrests when bowling). The Center-Post Mount is a custom mount designed for newer chairs with the legrest system that has the foot pads coming off the single center post. Between those two mounts, we can accommodate the vast majority of wheelchairs on the market and in use today.

What makes it real bowling? The United States Bowling Congress (USBC) sanctioned the IKAN Bowler for league play -- any league, anywhere in the U.S. -- bowling with and/or against able-bodied bowlers, or fellow IKAN Users. The USBC sanctioned it because the process mimics the able-bodied bowling process, i.e. setup, physically approach and release the ball upon stopping at the foul line. This is referred to as dynamic bowling, not stationary ramp bowling.

Who bowls and what are top scores? Thus far we've had people with Muscular Dystrophy, Cerebral Palsy, and Spinal Cord Injury, driving their chairs with different methods (joystick, sip-and-puff, head control and chin control) achieve scores of 150 and higher. The overall record is 243 by a spinal cord injured C4-5 quadriplegic in Colorado named Jon Musgrave. Click HERE for our message board thread with additional records.

#2. The IKAN Bowler is considered therapeutic medical equipment, and as such, financial assistance is available in most every state. One customer ONLY had to pay the SHIPPING cost for an IKAN Bowler! Click HERE to contact us for details!

#3. For $599 the IKAN Bowler with Universal Mount can be purchased and delivered anywhere in the continental United States. There's no sales tax for residents outside the state of Florida and shipping is included to the continental U.S. We can ship worldwide, click HERE to contact us for a shipping quote.

#4. Our mounts work with both the IKAN Bowler and IKAN Soccer Guard, enabling users to compete in two sports! Our quality mounts actually reinforce the legrests, especially compared to most existing mounts for power soccer. We have the best power soccer equipment available anywhere. Power soccer is already a popular sport being played lots of places. Click HERE for details.

#5. You've got to see it to believe it -- click HERE for links to two videos and a slideshow on power wheelchair bowling -- it's social, therapeutic, recreational, allows for legitimate competition, and it's a whole lot of FUN! :-)

Sincerely,

Bill Miller :-)
C1-2 Quadriplegic with a 202 High Bowling Game
Co-founder of Manufacturing Genuine Thrills Inc. d/b/a MGT
Business website: http://www.ikanbowler.com/
Personal website: http://www.lookmomnohands.net/